Carrying On: Jewish Genetic Disorder Awareness Must be at Forefront

As individuals who are part of the Jewish People, we have specific traits, traditions, beliefs, and a shared history that make us who we are. These things are unique to us and highlight the aspects of our identity that make us distinct and special. For instance, we share in our passion for giving back to the community, through mitzvot. We come together on issues regarding the safety and security of our homeland, Israel. We have a respect for and honor the Torah and use it as a tool to guide us in our actions through life. As Jewish People, we have many things that tie us to one another, things that are distinct to our culture and community. These above-mentioned layers are all beautiful and offer us a way to bond with others who share these similarities. However, there are some things that are unique to us, which are not celebrated. In fact, they can cause life-changing and life-ending consequences. These are genetic diseases linked to the Jewish community. And we need to continue to spread the word about their prevalence in our community, the need for heightened support services and greater attention to research and treatments.

There are a number of genetic diseases including Gaucher disease, Bloom Syndrome, Canavan disease, Niemann-Pick disease, Fanconi Anemia and Tay Sachs for which persons of Jewish heritage are more likely to be carriers than the general population. Carriers of these genes may be unaffected and even unaware of the genes that they carry. It is when both parents are carriers of a gene mutation for the same condition, that there becomes a 25% chance of having an affected child and a 50% chance of having a child who is a carrier as well. It has been estimated that one in seven Jewish individuals is a carrier of one of the aforementioned diseases. These diseases are all serious and can be fatal and or life altering to people born with them.

In October, we recognized Breast Cancer Awareness Month. You may not be aware that the BRCA gene that is linked to breast cancer occurs more often in Jewish women of Ashkenazic descent. “For a long time, as a youth, we saw a pattern of breast cancer in our family, but there was not enough research back then to identify genetic predispositions, and certainly no proactive measures you could take, such as voluntary mastectomy, to help decrease your chances of getting it,” says Claire* a JFCS Family Assistance Program client who was helped this past year by JFCS services, funded through the Walk 4 Friends and Family with Cancer that takes place each spring. “I lost my mother and grandmother to it, and suffered through debilitating chemotherapy and surgeries. My daughter opted to have both of her breasts removed, to reduce her chances of getting cancer also. JFCS and the support services they offered, helped both of us get through some very trying times.”

It is important to note that there are different genetic concerns for people of Ashkenazi Jewish background (Germany or Eastern Europe), and persons of Sephardic or Mizrahi Jewish background (Mediterranean, Iran/Persia or Middle Eastern). Currently, carrier screening for 19 genetic diseases which affect persons of Ashkenazi Jewish heritage are available. With advances in genetics, this list is likely to grow in the future. There are currently 16 genetic diseases that affect people of Sephardic and Mizrahi Jewish heritage for which screening is available. Screening recommendations are based on geographic origin.

Just as we share a bond with others of Jewish lineage, we also share the responsibility for awareness, fundraising, and efforts to spread the word on genetic testing. JFCS offers a list of potential Jewish genetic disorders and a list of resources for those who may be at risk for these diseases on our blog, at WEBSITE. In 2015, JFCS, in partnership with the Basser Center for BRCA of the Abramson Cancer Center, will be hosting BRCA gene seminars in partnership with our local synagogues and sisterhoods. Please look out for dates after the new year. As a community we can unify to promote a better quality of life and chance of survival for those who may be carrying or affected by these genetic disorders. I encourage each of you to reach out to me with thoughts or questions, at mmeyers@jfedsnj.org, or 856-424-1333.

Tolerance is the Key… For Every Person

“Tolerance is giving every other human being every right you claim for yourself.” –Robert Green Ingersoll (1833-1899)

In this world, there is a tendency for many to see things only one way – things are either black or white. There is only one way to perceive things, there is only one way to do things, there is only one right way. Unfortunately, that outlook presents difficulties, as life isn’t black and white. There is a rainbow of factors that make up the human race – all the varying colors combining in a very special way to make life so intensely vibrant – billions of people, all ages, thousands of languages, religions, races, backgrounds, socioeconomic statuses, and more.
The key to a harmonious community – both local and global- is acceptance, tolerance, and education. This is something that we stand by at JFCS, as part of the Jewish Federation family of agencies. We see this as our Holocaust Survivors meet with and share their poignant life stories and lessons with younger generations, not only to combat future genocide, but also to help provide a consciousness of human rights for all. In the community, at schools and synagogues, we focus on instilling the need for inclusion – not exclusion- of those with special needs to encourage and embrace their participation in our community in every way they desire. We also witness JFCS cultivating an understanding and compassion to others, to help support those who are struggling through economic hardships, loss of loved ones, mental illness, and addiction.

There is no room for judgment and labels in this harmonious community we strive to make ours. There is only- and should only ever be – acceptance, love, and loyalty, regardless of how other lives may differ from our own.

We are again reminded of this vision of an inclusive world, as LGBT (Lesbian, Gay, Bisexual and Transgender) Pride Month is upon us in this month of June. It again brings to light how important it is for all of us to appreciate and celebrate the differences of all the people around us.
This month our homeland, Israel, is showing its support as a Tel Aviv municipality morphed into a giant rainbow flag as a public reminder that it is Gay Pride Month.

The Tel Aviv LGBT International Film Festival will also take place during the month, along with a host of cultural events, lectures, exhibitions, festivals and other special attractions. From city to shore, here at home, the celebrations continue throughout the month. In the early part of June in Philadelphia, the 24th annual Pride Day LGBT Parade and Festival welcomed thousands, and featured live music, DJs, food, and a festive parade. The Cape May Stage showed its support for LGBT Pride month through a special Celebrating Pride play reading that celebrates the diversity of the American people and embraces sexuality in all its conceptions on June 23, in association with the Mid-Atlantic Center for the Arts & Humanities (MAC). We will continue to see more as the month winds to a close.

In Genesis God said, “Let Us make man in Our image, according to Our likeness; and let them rule over the fish of the sea and over the birds of the sky and over the cattle and over all the earth, and over every creeping thing that creeps on the earth.” God created man in His own image, in the image of God He created him; male and female He created them. This value is paramount to humanity. It implores us to understand that from the very start, each of us has been created in the direct image of God – that each of us deserves the same dignity and respect that we would bestow upon God, herself.
While there is still a long way to go for universal acceptance of all beings, we can all start at home to do our part. We can welcome our neighbors with light and love and understanding – so there is less hate, criticism, conflict, and animosity in this community and in our world in general.
We hope that you will join us, not only in this month – but every month – in celebrating the diversity that exists. Each person has something to offer, something to teach, something to help us broaden our experience on this planet – we should take every opportunity as an invitation to engage in the lives of others.

JFCS Community Calendar – Groups, Events, and Programs

SAMOST JFCS – COMMUNITY CALENDAR

  February 2014

 Free Family Law Consultations – Legal Panel

JFCS is offering this referral program on February 27 as a convenience to our community. This program includes free consultations with non-staff attorneys representing a variety of legal specialties, as well as referrals to other attorneys. 6:30 – 8:30 PM in Suite 150 at 1301 Springdale Rd, Cherry Hill, NJ. Appointments are required. To register call Meri Seligman at 856-424-1333 or email mseligman@jfedsnj.com

 March 2014

 Women in Work Job Strategy Seminar

JFCS Career Counseling Department will be offering, “Let’s Find a Job-Strategies That Work” on March 5. This will be held in honor of Jewish Women’s Month at the Katz JCC. Professionals will teach strategies that can help you find the job of your dreams. 10 – 12 PM in the JCC Room 206. For questions, contact Suzanne Post at spost@jfedsnj.org or call x1226.

Caregiver Support Groups

Caregiver Support Group for those caring for a senior or individual who is homebound. $36 registration fee. 10:30 – 12:00 PM at the JFCS mail location. March 6, April 3, May 1, June 12, July 3, August 7, September 4, October 2, November 6, December 4. For more information call 856-424-1333 or email rrosenau@jfedsng.org.

Stepping Out with JFCS Fundraiser 2014

Grab your favorite concert t-shirt and get ready to move and groove with us on March 8 at 7 PM at Congregation Beth El, with musical entertainment from the Don’t Call Me Francis Band! Last year over 500 people enjoyed the festivities – don’t be left out this year! Auctions, amazing food and much more await you – so get your tickets online today, here: http://www.jfcssnj.org/Calendar/SO14. For more information call 856-424-1333.

Alzheimer’s Caregiver Support Group

A special support group for those who are caring for an individual who has Alzheimer’s disease. Groups take place at 2:00 PM in Arden Court (2700 Chapel Ave West, Cherry Hill). March 18, April 8, May 20, June 16, July 15, August 19, September 16, October 21, November 18, December 16. No cost to attend. Respite provided. 2-3 PM. For information, call 856-424-1333 or email rrosenau@jfedsnj.org

 

Anxiety Management Support Group – Men and women ages 30 –70 who have difficulty with stress, anxiety, and excessive worry that affects daily life.  Sessions will include topics related to anxiety management  Structured as a discussion-oriented and skill development experience. March 20, for 12 weeks 5:30 pm—6:45 pm, at JFCS.  Insurance coverage co-pay or $40 per session fee.  Fee reduction subject to eligibility Call to Register with Intake Coordinator, Meri Seligman, (856) 424-1333, Ext. 1177 . ALL POTENTIAL MEMBERS WILL HAVE TO ATTEND A PRE SCREENING.

Purim Holiday Food Project

Volunteers will be needed on March 30 at Congregation M’Kor Sholom (850 Evesham Road, Cherry Hill, 08003) to help sort, bag, and deliver donated food items that will then be delivered to the JFCS Betsy and Peter Fischer Food Pantries. Register to volunteer to sort, box, or deliver food, by emailing Andi Loew at aloew@jfedsny.org or call 856-424-1333 ext. 1180.

April 2014

 Walk 4 Family & Friends with Cancer

Proceeds benefit The Family Assistance Program of Samost Jewish Family & Children’s Service, which provides direct financial assistance for those living with cancer. $30 per person ($15—ages 6 to 18) if received by March 29. Otherwise, cost is $35 day of event.  Sign-in begins at 8:30 AM.  For registration and sponsorship information, log onto: www.walk4family-friendswithcancer.org  Register by mail: Send check to: Walk 4, PO Box #44 Voorhees, New Jersey 08043  (Checks payable to “Walk 4 Family—Friends with Cancer”)

 GO GAGA for JFCS!

Are your kids missing the game gaga from their days at camp? Well then, it’s time to get down with gaga! This fast-paced game that is played much like dodge ball is the theme for our day of family fun! On April 27, bring your family and watch players from all over Southern New Jersey enjoy friendly competition for a great cause. 1:00 – 4:00 PM at the Katz JCC gymnasium on Springdale Rd. For more information, call Beth Wynne at 856-424-1333 or email bwynne@jfedsnj.org.

 May 2014

JFCS Annual Meeting and Volunteer Recognition

On May 1, JFCS will hold its Annual Meeting and Volunteer Recognition, honoring the staff, board, volunteers and community organizations that support JFCS in our mission to bring help and hope to the community.

June 2014

SAILebration

On June 22 JFCS will be celebrating 10 Years of the Special Needs SAIL and Supported Employment Programs. For more information contact 856-424-1333 or email Barbara Abrams at babrams@jfedsnj.org.

JFCS Spreads Awareness on Domestic Violence

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It is hard to say how long Lynn* waited, scared alone in her room. Just waiting for the hum of the motor in the driveway, so she could breathe a sigh of relief knowing her husband was leaving. What had started out as a dinner with her husband and two children had ended in another brutal attack. Lynn can’t remember what had sparked her spouse’s temper on this given night, and provoked the hair pulling and beating, as the kids were upstairs readying for bed. Truthfully, there were too many nights like this to count, and they all started to blur together. She knew the children had heard this fight, and the screams, and she knew she would have to leave as soon as the coast was clear. Deep down, she had wished she had seen the warning signs and the pattern of abuse that started this – so she could have stopped it before it involved her children. Lynn is just one of hundreds of individuals – men and women – who seek help from the JFCS Project SARAH anti-abuse program to find safety and a life free from abuse. And, JFCS is here waiting for the call, waiting to aid those in such crisis.

In fact, over the next few months, JFCS will be taking further measures to raise awareness of domestic abuse in our community of Southern New Jersey, to promote prevention of violent situations, and to inform the community of the many services and resources available.

In the last year, Project SARAH coordinators have been busy increasing partnerships with local hospitals, police and fire departments, and emergency aid organizations to help train and educate service providers on issues pertaining to abuse. Additionally, Project SARAH professionals have been presenting the Building Healthy Relationships program, which has helped to educate over 400 teens to date, in high schools, Hebrew Highs, churches and youth organizations. This aspect of the program helps teens to identify potential abusers, and recognize early precursors to violence in a relationship – in an effort to stop the cycle of violence before it starts. Project SARAH also offers mental health counseling, legal and financial resources, food pantry support, and assists with gaining access to safe shelter.

It is up to us to spread the word about these services, and raise awareness to help those who need us. Most victims suffer in silence – not knowing there is a way out of the darkness.

For many, the silence is deafening. Silence… while 1 in 4 women are abused each minute, 1 in 7 men are abused, and 3 million children witness domestic abuse in their homes each year. Silence… while survivors of domestic violence face high rates of depression, sleep disturbances, anxiety, flashbacks, and other emotional distress. Silence… while emotional, financial, digital abuse and control tactics are utilized to make a person feel weak and scared. Sadly, many victims don’t realize the subtle ways someone is controlling them until it’s too late.

We hope you’ll join us during Domestic Violence Awareness Month this October – to rise to the challenge in spreading awareness, educating our youth, protecting others from violence – and empowering all to take a stand against abuse. This October, JFCS will give a voice to those who are in need, as we fortify the public with knowledge and resources on this issue. JFCS will be raising awareness during Shabbat services at area synagogues, sharing information on domestic violence, support services, and ways that the community can get involved. If your organization, synagogue, school, or church would like to invite JFCS to make a Project SARAH presentation, please call 856-424-1333. And, if you, or someone you know needs our domestic abuse services, please call and ask for SARAH. We are here to help the community and those affected by violence and provide a sense of safety, love and compassion to those entangled in domestic abuse.

JFCS took to the streets during the Month of October, giving speeches and information out to local synagogues, churches and area organizations. We know we’re not done yet – but we won’t stop until the cycle of violence is ended for good.

*name has been changed to protect confidentiality